Post-op Day #6
We apologize for not posting a blog update the past 2 days. Truthfully, there has not been much to update on. Devin’s lungs have not really had any improvement in the last few days. We have times where we see a little improvement, but then things swing the other way and his progress is lost. So, it feels like 2 steps forward, & 3 steps back on repeat. Obviously this is disappointing too us for many reasons. It feels like any progress he makes toward going home we lose. Yesterday, there were plans to have him extubated today, but this morning’s x-ray, along with him not tolerating less breathing support; just confirmed he was not ready for that jump yet.
Today, Devin was taken down to have a “moving x-ray” of his diaphragm to see if it is working, or if it has become paralyzed from surgery. After getting the results back from the test, they confirmed today that his diaphragm has been paralyzed. With his diaphragm being paralyzed, this does not allow his lung to fully inflate, which could be the culprit of why Devin’s lungs haven’t healed since surgery.
It has been one week since Devin’s surgery! One week since we’ve been able to hold him. And one week since we’ve been home, or seen the other 3 boys. It feels like this is an extension of our 10 week stay in the spring, making this week seem long.
We know it’s not forever. We know that months from now this will just be a vivid memory. It’s just hard to keep site of that some days. So we just want to thank you, and ask for your continued support in prayer. Some days I’m sure the only thing that is holding us up are the answered prayers of so many diligently bringing our names before the Lord. Please pray for continued strength and peace for our family through this, and of course for Devin’s lungs to be healed and to be able to breathe all on his own.
I will just say again. The Lord has masterfully orchestrated the fact that Devin would be born in Texas, and that we would have access to such amazing care for his very specific heart condition of HLHS with an Intact Septum. We are granted much peace each day as we walk these halls, and know that Devin is in such great care. The surgeons, doctors, nurses, NP’s, PA’s, RT’s, etc. keep us very much involved and educated on what’s going on. (That’s just a free little PSA for you)
We continue to hope and pray for much progress over the coming weekend!!
Today, Devin was taken down to have a “moving x-ray” of his diaphragm to see if it is working, or if it has become paralyzed from surgery. After getting the results back from the test, they confirmed today that his diaphragm has been paralyzed. With his diaphragm being paralyzed, this does not allow his lung to fully inflate, which could be the culprit of why Devin’s lungs haven’t healed since surgery.
It has been one week since Devin’s surgery! One week since we’ve been able to hold him. And one week since we’ve been home, or seen the other 3 boys. It feels like this is an extension of our 10 week stay in the spring, making this week seem long.
We know it’s not forever. We know that months from now this will just be a vivid memory. It’s just hard to keep site of that some days. So we just want to thank you, and ask for your continued support in prayer. Some days I’m sure the only thing that is holding us up are the answered prayers of so many diligently bringing our names before the Lord. Please pray for continued strength and peace for our family through this, and of course for Devin’s lungs to be healed and to be able to breathe all on his own.
I will just say again. The Lord has masterfully orchestrated the fact that Devin would be born in Texas, and that we would have access to such amazing care for his very specific heart condition of HLHS with an Intact Septum. We are granted much peace each day as we walk these halls, and know that Devin is in such great care. The surgeons, doctors, nurses, NP’s, PA’s, RT’s, etc. keep us very much involved and educated on what’s going on. (That’s just a free little PSA for you)
We continue to hope and pray for much progress over the coming weekend!!
Oh Stefanie... I can only imagine how difficult this is. So many things coming together at one time and having no control over it. Must be frustrating to say the least. Just try to remember that you're a part of a Kingdom and that king loves you, loves your husband and loves your boys more than we can ever imagine. He will hold you and carry y'all through. Continued, unceasing prayers from me. 💙💙💙💙
ReplyDeleteThank you so much for the update...
So sorry! Will continue praying for Devin and for you, to have strength to carry on ! Bless and your family !!! 🙏🏻💚💚
ReplyDeleteBless you all, praying for your precious Son & for you all. May God give you strength, Love you all so very much Weese
ReplyDeletePrayers form our heart family to yours!!! We will pray for his lungs and diaphragm to be strengthened! Devin is a little fighter!! May God encourage you in this time!
ReplyDelete